|"Mommy! Look! I brought chocolate cake to my bed!"|
I'll share the highlights from the report. "Gabriel had a hard time cutting anything but a straight line and kept snipping the paper instead of cutting. He also had a hard time manipulating his fingers when touching fingers to thumbs. He had to use one hand to manipulate the other to do what he needed to do. When copying figures, he was unable to do any except for a circle and straight line. He held his hand on the upper 1/3rd of the writing instrument and had a modified tripod grasp that was very weak..." You get the idea. He didn't have any strength in his fingers.
They said they thought all his behavior issues were due to very low muscle tone in his mouth, fingers, and core and at first I just couldn't accept this explanation. How could this be? Surely I would have seen it. They asked me if he had a weak suck as a baby. I recalled that I had to nurse him with a nipple shield for two years because he wouldn't latch no matter what we tried. I remember that he refused straw sippy cups and wouldn't take anything except 3 month sippys until he was over 24months. He still drools excessively and doesn't feel that his chin and shirt are wet. They asked me if he had trouble with silverware, held cups with both hands, and did I still spoon feed him on occasion. Yes, yes, yes. Did he lay on the floor a lot when playing with toys, did he refuse to sit upright on the floor for extended periods at school? It went on and on. It was like they'd known him for years.
|Abnormal to only be able to operate a |
bulldozer if resting on stomach?
I took a few days to digest the news and then hit the interwebs to do research, except we didn't have any internet this weekend. ARGH! Anyway, I was able to at least do a little research on 3G and found this helpful article on The Pediatric OT, and I joined a moderately helpful facebook group on the subject. It seems this is a pretty fixable problem and usually treated with physical and occupational therapy for at least a year. He starts pre-k next school year, so my goal is to have him within the normal or average range before kindergarten. It's only been a few days since his diagnosis and I'm already frustrated at the slow pace of the system. I want him in therapy NOW! At the suggestion of the committee, we have an appointment with our pediatrician tomorrow to discuss everything. I understand the standard course of action is a referral for a full neurophysiological evaluation. How long before that happens? How long afterwards does therapy start? So many unanswered questions at the moment and I'm feeling so impatient! Simultaneously to the medical route, he will get an evaluation from the city's child occupational therapist and then we'll meet with the child study committee again mid-feb. I'm hopeful that he will at least be able to get therapy through that avenue while we wait on things to get started via the pediatrician. Right now there's a lot of waiting.
|Another active shot|